In India Organ Donation and Transplantation is governed by an Act of Parliament i.e. Transplantation of Human Organs Act-1994. The same was adopted by the Orissa Legislative Assembly (OLA) in Aug. 1998. The necessary rules for constituting the Appropriate Authority and Authorization Committee were put in place in May 2001 only. But no rules were framed to formalize Brain Death and thus no ground was prepared to go for Cadaveric Transplantation.
When the rest of the World is trying to increase the percentage of Non Heart Beating Donation (NHBD) compared to Beating Heart Donation, most parts of India is not even aware of the existence of such a treatment for the people with end stage organ failure. When the average rate of Deceased Donor Transplantation (DDT) is 35 per Million in Spain, it is not even one in India.
With this background and with the aim of promoting DDT in Orissa, when MOTHER started its activities in May 2007, it confronted the following scenario:
1. Ignorance on the part of not only the policy makers and policy implementers, but also on the part of Doctors.
2. Lack of awareness and appreciation among the people.
3. Social and religious superstition among almost all sections of the society. 4. Absence of proper legal frame work to facilitate DDT(Deceaed Donor Transplantation).
5. Lack of suitable Hospital facility. No Govt. Hospital has the facility yet.
6. In most of the Govt. Hospitals, the dialysis machines were not operational since their procurement in 2004.
7. Lack of confidence in the ability of local surgeons and especially on the private Hospitals.
In order to overcome the above, we adopted the following steps:
1. Distributed IEC (Information, Education & Communication) materials to as many people possible. Nearly 20,000 leaflets have been distributed so far.
2. Organized events and mass rally to propagate the concept.
3. Inserted articles in Oriya dailies.
4. Tried to reach the people through T.V. telecast both on Door Darshan and local channel. (Five telecasts so far).
5. Had meeting with H.E., the Governor of Orissa, and the Hon'ble Chief Minister. Had Several meetings with the Hon'ble Health Ministers and Health Secretaries.